With the redesign of my web site, I’m starting to import blog posts from The Loom (and elsewhere). Please come back soon to see it in all its reconstituted glory!
After a long stretch of quiet here on the Loom, I wanted to let you know what I’ve been up to, and what I’m going to be up to over the next couple years. I’ve got some new projects afoot.
Fibrodysplasia ossificans progressiva is an incredibly rare disease, striking just one out of every two million people. It’s also an incredibly astonishing disease. A single mutation to a single gene causes muscles to spontaneously turn into new bones. Over time, people with fibrodysplasia ossificans progressiva (FOP for short) grow a second skeleton–one that can cut their lives short.
I wrote about FOP in “The Girl Who Turned to Bone” in the Atlantic in 2013. At the time, FOP served as a microcosm for the struggles of people with rare diseases. (In the United States, almost 30 million people have rare diseases of one kind or another.) Continue reading “Fighting the Second Skeleton”
Robert Krulwich is a host of the show Radiolab, but he’s also a blogger, having written many posts over the years for National Public Radio. I’m delighted to welcome Robert to Phenomena, which is host to his new blog, “Curiously Krulwich.”
(Full disclosure: I’ve known Robert for a long time. We first met to hunt for autumn leaves in my neighborhood. And we’ve carried on a long-running conversation on a variety of topics such as whether parasites are terrible or awesome. Spoiler alert: they are awesome.)
To celebrate Robert’s arrival, I asked him a few questions about his blogging experiences: Continue reading “Please Welcome Robert Krulwich to Phenomena!”