In The Wrong Hands, by Ryan Gabrielson, California Watch/Center for Investigative Reporting. $.99, Kindle Single.

 by Deborah Blum

ProxyFor well over a year, the investigative reporters at California Watch (part of the non-profit center for Investigative Reporting) have been pursuing a story involving abuse of mentally ill patients in state care -  and of institutional indifference to that abuse.

That investigation, led by Ryan Gabrielson, focused on five state operated centers that house "some of society's most vulnerable citizens – men and women with severe autism, cerebral palsy and other intellectual disabilities living in taxpayer funded institutions." To sum up the results, it found that center residents had been beaten, tortured and raped by staff members. And that a police force, set up to protect resident safety, had apparently helpfully looked the other way.

The stories, first detailed in a series called Broken Shield, are best described as horrifying, a litany that includes the taser burning of a dozen patients, the rape of others, and the death of a quadriplegic patient with cerebral palsy, who died of internal bleeding after three cotton-tipped swabs tore through his esophagus. None of these incidents, as the investigation makes clear, were thoroughly evaluated by the well-paid police force assigned to those centers. In many cases, including the worst ones, no charges were filed.

There's another interesting issue here–the platforms which California Watch used to tell this story–but I'd rather start by considering its importance, its indictment of the way we care for helpless and troubled people, in particular the system in California. And to acknowledge that I'm not alone in this reaction. Everyone from newspaper readers to state officials was appalled. The stories prompted major reorganizations of centers, investigations by outside experts, and new legislation, signed by Gov. Jerry Brown, mandating far stricter law enforcement oversight. This month, the state agreed not to seek Medicare reimbursement for care at the most troubled centers. This is a story that matters, one of the reasons I wanted to bring it up here.

430420_10151340576205247_229424654_nThese powerful changes are foremost a result of really powerful reporting. But California Watch also amplified that effect by making sure that its findings were heard across multiple platforms. The stories were placed on its website. They were distributed to newspapers across the state, running in all eight of the state's largest newspapers. They were showcased on radio programs, partly through the center's partnership with KQED. Videos were provided to television stations. California Watch even produced a graphic-novel style video, which illustrated the trauma suffered by patients and their families.

And in December, the Center for Investigative Reporting published the series as a 99-cent Kindle single titled In the Wrong Hands: How a Police Force Failed California's Most Vulnerable Citizens. In one sense, the single is perhaps the least impressive part of this approach. It's a workmanlike summary of the original series rather than a uniquely good e-publication in its own right. The story-telling remains in a basic newspaper format;  there's a puzzling lack of illustration, audio, video or really anything would bring additional life to the telling.

This is less of a problem in a gorgeous narrative or exceptionally fun-to-read story. But this is neither of those things. In the Wrong Hands reads like what it is –a repackaged newspaper series rather than a well-articulated book. It's dense enough and dark enough to occasionally be a challenge to read–exactly the kind of story that benefits from other kinds of media–perhaps even some of California Watch's own novelistic video. I suspect that with a little more time and care, this could have been  a more substantial and more meaningful e-single, one that would have reached  an even wider audience (when I checked on January 21, its Kindle single standing was 364,414).

I respect–and even admire–the California Watch model for distributing news and for solvency in a digital age (briefly outlined here at the Nieman Journalism Lab). But as someone who also has hopes for the e-publishing age that we are growing into, I'd like to argue for setting a high professional standard for e-books, both short and long, one that really moves them beyond old-time print. If we're building a new model of story telling then there's nothing wrong wanting it to be a really good one.

And, after all, a great investigation–which In the Wrong Hands was–deserves a great platform.

Blum

Deborah Blum, author of The Poisoner's Handbook, published her first e-single, Angel Killer, last year. She writes for numerous publications, blogs about chemistry at Wired, and teaches journalism at the University of Wisconsin-Madison.


WhenIm164coverWhen I'm 164, by David Ewing Duncan, Published by TED Books (Available for Kindle, iPad, Nook)

Reviewed by Annalee Newitz

Half cultural prognostication and half science journalism, David Ewing Duncan's TED Books longread When I'm 64 explores whether medicine will one day make it possible for us to live forever — and what would happen to human society if we did. It's a hotly debated topic, and Duncan takes his time tackling every aspect of it in this lengthy essay. Engaging and often fun, the book takes us from the labs where scientists are exploring the genes that control aging, to brain-computer interface demonstrations where paralyzed people are learning to control artificial limbs with their minds. Whether we do it with biology or machines, it's likely that humans will artificially enhance our longevity at some point. Though the prospect of doubling our life expectancy seems crazy to some, Duncan argues it's not entirely implausible. Especially given how far we've come over the past century. 

Still, ethical questions plague the project. While researching his book, Duncan ran a survey online and in his lectures where he asked people if they would like to live beyond the standard 80 years. Most said no, though a significant minority said they wouldn't mind living to be 120 or 164. Those yearning to be immortal represented less than one percent of respondents. Many people felt that living longer than 80 years would mean depleting the Earth's resources even more quickly than we already are. Others worried that young people would have no chance at getting good jobs, since their elders could keep working for decades longer. Some simply felt that living for a long time would be depressing and boring.

Several sections of the book are devoted to Duncan's quest to understand how it would change humanity if we could live much longer than we do now. From the rational world of tissue engineering labs where researchers hope to use 3D printers to make healthy, new organs, he ventures into Singularity University where would-be immortals from Silicon Valley listen eagerly to longevity advocate Aubrey De Gray's prediction that the first person who will live to be 1,000 has already been born. These true believers imagine that science will solve our energy problems and economic difficulties long before overpopulation due to immortality becomes a planet-destroying problem.

As if acknowledging the mostly unscientific nature of the longevity project, Duncan explores its implications by discussing mythology and science fiction about immortality. We may not know what role telomeres play in aging, but we certainly know that The Matrix and Terminator warn against using technology to enhance humans. Given the speculative nature of his topic, Duncan's forays into fiction make a lot of sense, and help provide a cultural frame for debates over longevity enhancement.

Here on Download the Universe, we often discuss how a particular e-book makes use of the medium, whether with enhanced images, video, or even just a good set of links out to more sources. But with When I'm 164, I'd like to talk about a stylistic quirk of e-books that has nothing to do with format: the fact that it's become standard practice for online writing to include a lot of first-person, confessional storytelling. 

Should online writing always be personal? Certainly it's refreshing that online writers try to avoid some of the print media's fake objectivity. But should that always mean authors need to personalize their subjects?

Like a lot of longreads online, Duncan's book veers into the personal. He delves into his sadness at his parents' impending deaths, interviews both them and one of his sons about their views on life extension, and ultimately concludes the book by declaring that he's emotionally torn by the idea of living forever. In some ways, the climax of the book is Duncan's final declaration of ambivalence about scientifically enhanced longevity. I think this personal touch works in some ways — it helps to draw the reader in, and acknowledges the highly personal responses that many people have to this area of research.  

But it often reads as cheesy and unnecessary, as if Duncan were just going through the motions of making his online writing more personal than print.  Of course it's easy to sympathize with his sadness at a parent's decline, but there is nothing particularly insightful or unusual to Duncan's first-person stories about these issues. He paints the scientists and thinkers he's consulted for this book in far more interesting detail than he paints himself. The first person bits just weren't necessary to make this story compelling.

Duncan is at his best when coaxing out intriguing speculations from scientists, engineers and philosophers about their views on life extension. Duncan's observations of their work form the meat of this extremely gripping tale about one possible future — of enhanced longevity — that could arise from contemporary medical science.


Newitz12web2Annalee Newitz is the editor-in-chief of io9.com, and the author of
Scatter, Adapt and Remember: How Humans Will Survive a Mass Extinction (coming in May 2013 from Doubleday).

ColdBlooded 300

Cold Blooded by Jere Longman. $1.99 (Amazon Prime members can borrow the book for free.) Available as a Kindle single.

Guest review by Christie Aschwanden


In early October, the U.S. Anti-Doping Agency (USADA) released hundreds of documents implicating seven-time Tour de France winner Lance Armstrong in something the agency dubbed the most sophisticated, professionalized and successful doping program that sport has ever seen. Jere Longman's Kindle Single Cold Blooded is essentially a Cliff Notes version of the USADA report.

In just 49 pages, Longman's ebook provides a cohesive synopsis of the case. Condensing the material was no easy feat. The USADA report contains 200-plus pages, including affidavits from more than 25 witnesses and hundreds of supporting documents, such as bank records and blood test results. Longman expertly turns this data dump into a readable summary that contains both the most important evidence (Armstrong's payments of more than one million dollars to Italian doctor Michele Ferrari) and the most amusing, such as Armstrong teammate David Zabriskie' parody of the Jimi Hendrix tune Purple Haze,

EPO all in my veins

Lately things just don't seem the same

Actin' funny, but I don't know why

'Scuse me while I pass this guy

The Zabriskie anecdote aside, Longman's writing is detached and uninspiring, no doubt because he pieced the story together from the USADA documents rather than first-hand reporting. The following passage is typical:

Shortly after the 2000 Tour de France ended, French authorities began an investigation into suspected doping by Armstrong and the Postal Service team. An anonymous letter had been sent to prosecutors in Paris. A television crew had spotted two men – Postal Service team personnel – tossing medical waste into a trash container.

For readers unfamiliar with cycling and the Armstrong case, Longman's book supplies a quick yet substantial overview. The work also stands as a convincing example of the ebook format's utility for condensing a bolus of evidence into a useful summary. I can imagine similar treatments for the next celebrity scandal or even the latest IPCC report.

Those familiar with the Armstrong case will find nothing new in Longman's ebook. If you're looking for character development or analysis, you're better off reading From Lance to Landis by David Walsh, or his forthcoming Seven Deadly Sins. Longman's colleague at the New York Times, Juliet Macur, also has a book in the works, and the USADA case report itself makes fascinating reading. Some of the affidavits weave narratives as compelling as you'll find in any novel.

The Lance Armstrong that emerges from the USADA report is a narcissistic bully who becomes increasingly vindictive toward those who dare to question him. He slaps lawsuits at his accusers and at one point, he sends a threatening text to the wife of a teammate who's set to testify against him. The evidence outlined in Cold Blooded leaves little doubt that Armstrong was a leader in what USADA CEO Travis Tygart calls a conspiracy "professionally designed to groom and pressure athletes to use dangerous drugs, to evade detection, to ensure its secrecy and ultimately gain an unfair competitive advantage through superior doping practices." As ESPN sports writer Bonnie Ford wrote following the report's release, "anyone who remains unconvinced [of Armstrong's guilt] simply doesn't want to know."

There's been a lot of deliberate not knowing over the years, and Armstrong was not the first to exploit it. Doping has been a part of cycling since nearly the beginning. The sport did not originate in the Olympic tradition but as a competition to get from here to there as fast as possible on your own steam. In the cycling's early days, racers often took cognac or amphetamines in hopes of boosting their performance. Back then, such practices weren't considered cheating. Drugs were eventually banned to protect rider health, not as a result of ethical qualms.

When U.S. team doctors and coaches blood doped members of the 1984 Olympic cycling team, they broke no official rules. Some of the team's riders refused to participate in the doping scheme, but they came to that decision via their own moral standards. Rules against doping received very little enforcement until the formation of the World Anti-Doping Agency (WADA) and its U.S. affiliate USADA in 1999, and even then, cycling's governing body remained more interested in protecting its sport's reputation and its rainmakers than in any notions of fair play. In Cold Blooded, Longman describes how Armstrong paid the UCI to cover up a positive test at the Tour of Switzerland in 1999 and the New York Daily News has reported that Nike, a long-time sponsor of Armstrong and his cancer foundation, helped pay for the bribe

Armstrong didn't invent doping, he just did it better than anyone else before him. He understood from the beginning that fans wanted something bigger than life to believe in, and he was more than willing to oblige. His triumph over cancer gave hope to countless patients around the world, and cancer became his shield to deflect criticism. Hope was a product he could sell to his sponsors and the public. He built an empire around a false story. As I've written elsewhere, even his comeback from cancer was not as remarkable as it seems. His fraud succeeded with the complicity of accomplices and bystanders who stood to gain from his success.

Some of these co-conspirators, such as team director Johan Bruyneel and doping doctor Michele Ferrari also face sanctioning in the USADA case. Other participants in the doping culture, like Bjarne Riis and Jonathan Vaughters, remain leaders in the sport to this day.

Cycling was dirty when Armstrong arrived at the sport. The question that remains is, will it remain dirty now that he's gone?

 


ChristieSquare100Christie Aschwanden is a contributing writer for
Bicycling Magazine. She has written about doping for NPR, New Scientist, The Washington Post, BBC Future, and Smithsonian. She blogs about science at Last Word On Nothing.

 

Symbolia coverSymbolia. First issue free. Subsequent individual issues $1.99. Annual subscription $11.99. Available as an iPad app or pdf; other devices to come. See web site for details

Comics first gained respectability as art, then as storytelling, and more recently as comics journalism. Joe Sacco's celebrated Safe Area Goradze, for example, showed how comics journalism could deliver powerful portrait of life during wartime. Published in 2001, Safe Area Goradze was the product of a pre-ebook age, the sort of printed work that you might buy as a deluxe hardbound edition and display on a shelf. A decade later, comics journalists are increasingly giving up paper and going digital.

A new example of this new genre is Symbolia, a magazine that released its first issue this week. It's been generating a good deal of buzz, with write-ups in venues like the Columbia Journalism Review, Poynter, and Publisher's Weekly. I decided to check it out and discovered a creation that was fit for reviewing at Download the Universe. That's because three out of the five stories in the first edition are about science.

Continue reading “Evolving Fish, A Dying Sea, And A New Genre: Digital Comics Science Journalism”


Angel Killer 300Angel Killer
, by Deborah Blum (The Atavist, October 2012). 
Available via The Atavist app and for Kindle.

Reviewed by Annalee Newitz

With the essay Angel Killer, science historian Deborah Blum (a DTU editor) takes us into the disturbing world of Albert Fish, a serial killer who raped, murdered and ate perhaps dozens of children in New York City during the 1920s. But this essay is more than an elegant true crime story of atrocious transgression and dogged detection. It exposes the origins of a clash between the scientific and religious approaches to punishment, by reminding us of the most important aspect of the Fish case. Generally, the "Gray Man," as he was nicknamed, is remembered for his ghoulish crimes against children — and himself, as he was fond of driving needles into his groin. In Angel Killer, however, Blum makes the case that his trial is what should go down in history. It was the first high-profile trial where psychologists argued that a murderer should not get the death penalty for reasons of insanity. 

Though we hear the phrase "not guilty by reason of insanity" a lot in fiction, Blum points out that in reality it is not generally a successful plea. Even today, very few criminals are found to be insane, even when they've done things that are as beyond the pale as Fish's cannibalistic rituals. By retelling the story of Fish and the society that condemned him to death, Blum is able to explore one of the areas where scientific reason is most often swept aside for an Old Testament notion of "eye for an eye" justice. Though judges, juries, and even psychologists knew that a child killer like Fish was in fact insane and therefore unable to distinguish between right and wrong, they could not bring themselves to treat him the way psychology would demand. Instead of offering him treatment, Fish's peers resorted to an ancient and ultimately superstitious notion that he was simply evil and therefore should be struck down by the state for his acts.  

Though we can see the war between scientific and religious ideas of transgression slowly building throughout Blum's essay, she never beats the reader over the head with socio-political analysis. Instead, she allows the story to speak for itself. One of the most intriguing characters to emerge, other than the mysterious Fish, is the psychologist who worked most on the killer's case. That was the young Fredric Wertham, who became famous in the 1950s for arguing that violent and sexual images in comics were inspiring juvenile delinquency in his book The Seduction of the Innocent. Wertham, who worked with many of New York's poorest populations, was eager to take on Fish's case because he was all too familiar with how little attention was usually paid to the sorts of working class and impoverished families who had lost their children to Fish's knife. 

Wertham was also oddly sympathetic to Fish. After hours of interviews with the jailed killer, Wertham became convinced that Fish was absolutely insane. Aside from his known crimes, Fish also spoke to angels, mutilated himself, and had religious delusions about becoming a god. He'd even been committed to asylums a couple of times, once by his own daughter. Wertham wanted to find out how such a man could have been in and out of mental institutions without anyone ever noticing that he was violently unstable. In court, Wertham argued that Fish could not have understood that his crimes were wrong, and that he deserved life in a mental institution rather than the electric chair.

What emerges from Blum's tale of Wertham's court battle is a profound sense of our struggle as a culture to deal scientifically with mental illness. Most people fundamentally believe that criminals like Fish are "bad" and "evil" and should therefore be killed. Psychologists today still fight to convince juries and the public that some criminals have damaged minds, shaped by horrific circumstances. Fish's story, which begins with his abusive childhood in an orphanage, is a classic tale of a troubled person who was neglected and mistreated by the very institutions that were supposed to aid him. Even the psychologists who saw him as an adult, and knew about his profound delusions, released him onto the street because he was "sane enough." Instead of recovering, Fish only sank more deeply into madness.

Blum's essay is available via the Atavist app, whose enhancements make the experience of reading almost cinematic. The story begins with a haunting 1920s-era film of Staten Island ferries docking in downtown Manhattan, set to period music. Maps of the crime scenes walk us through the early twentieth century streets of New York City like we were cops on the beat. And Blum treats us to snapshots of the screaming headlines about Fish's murders and trial, which help us understand how his crimes were depicted at the time. At one point, we have the opportunity to pull up a creepy letter that Fish sent to the mother of one of his victims (complete with a warning that it may be too graphic for some readers). The multimedia extras never feel extraneous, and aid enormously with the historical scene-setting required here.

Ultimately Angel Killer is not a story of crime — it is a story of how we understand crime. More than that, it is about how science has the opportunity to change profoundly the way we treat both criminals and the mentally ill. The tragedy is that when it comes to human atrocity, science often fails to persuade us and superstition takes over. Albert Fish was killed in the electric chair at Sing Sing in 1936.

Newitz12teenyAnnalee Newitz is the editor-in-chief of io9.com, and the author of the forthcoming book Scatter, Adapt and Remember: How Humans Will Survive the Next Mass Extinction.